Soaring Onward
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Soar Challenges I see. I'm seen? Challenge A New Day Challenge World of Color Challenge When it Rains it Pours Soar Photography Project Needles to Say - The Cactus Project MidSummer's Eve The Wishful Ways Challenge Hand in Hand Challenge Soar Symbols Challenge Catastrophe Challenge DeMask Challenge Positive Challenge Difference is... 16 I Thrive Challenge Fridge Art Challenge Draw the Change Challenge Wear Stripes for Rare Disorders, Rally with Us (Copy)
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Soaring Onward

FROM SORE TO SOAR

Peace

 

Lifelines, Helplines & Hotlines

Advocacy & Resources

  • The Carter Center

    • Website: https://www.cartercenter.org

    • Description: Envisions a world where people are free to enjoy all their human rights to reach their full potential and live in dignity. Strives to advance the rights of protected groups, apply comprehensive human rights framework through programming in the US, promote climate and environmental justice, expertise on human rights issues.

$ Funding Opportunities


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FROM SORE TO SOAR

Physical Disorders

 

Lifelines, Helplines & Hotlines

Advocacy & Resources

  • Emily Ann Griffin Foundation

    • Website: www.EAGF.org

    • Description: Touches the lives of other families who are not able to afford the costly medical equipment often prescribed to support and enhance their child’s life, exploring funding to keep kids on the move, accessible, safe, communicating, extra support while sitting, healthy and happy.

  • HANNAH’S HELPERS (CA)

    • Website: https://hannahshelpers.org

      Description: Hannah’s Helpers focuses on supporting families and health care providers of special needs families. Mission includes open avenues to universal changing places and pillow cases.

  • Universal Changing Places

    • Website: https://universalchangingplaces.com

    • Description: Grassroots movement to make people aware of the need for Powered Height Adjustable ADULT Changing Tables in Family/Companion Care Restrooms for people who are non-ambulatory or who have self care issues

$ Funding Opportunities

  • Emily Ann Griffin Foundation (see above) - Scholarships

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From Sore to Soar

Police Interaction

Officers should be trained in mental illness, And understand signs of missed medication. They should communicate in a direct, calming voice and know how to minimize revengeful acts and aggressive language. Anything you do or say can be used against you in a court of law. Allow offers to make informed complex decisions. BE POLITE, not confrontational REPORT NAME, ADDRESS, AND AGE, AVOID MAKING SUDDEN MOVEMENTS, REMAIN CALM, DO NOT RUN AWAY,, DO NOT SIGN ANY FORMS. Disclosure can be made verbally or through an information card or bracelet. Advocate for crisis plans, know common places you may be confronted or screened, AND role-play interactions. it’s okay NOT to answer questions until you’re accompanied by an attorney, guardian, or advocacy organization who UNDERSTANDS your disability (Debbadt, 2006; Pacer Center, Inc., 2009, Lipson et al. 2010)

The Action is in the Interaction - Douglas Conant

Lifelines, Helplines & Hotlines

911

1-800-THE-LOST

Suicide Prevention Lifeline: 1-800-273-TALK

Domestic Violence Hotline: 1-800-799-SAFE

Sexual Abuse Hotline: 1-800-656-HOPE

ICE Tip Form: https://www.ice.gov/webform/ice-tip-form

Advocacy & Resources

  • Autism Speaks

    • Website: https://www.autismspeaks.org

    • Description: Understanding autism across the spectrum and throughout the lifespan, how better understanding can support better outcomes in police interactions with autistics.

  • * Children of Fallen Heroes (military, foster care, first responders)

    • Website: https://www.childrenoffallenheroes.org/

    • Description: remember heroes, support groups, memorial activities, community outreach, resources and referrals, honoring heroes tour with professional parachute demonstration

  • Pacer Center, Inc.

    • Website: https://www.pacer.org

    • Description: Provides information on what Youth should do if questioned by police, how to communicate with probation officers, and the correction systems.

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References

Debbaudt (2006). Interacting with Law Enforcement. Autism Speaks. Retrieved from: https://www.autismspeaks.org/interacting-law-enforcement

Delehanty, C., Mewhirter, J., Welch, R.,m Wilks, J. (2017). Militarization and police violence: The case of the 1033 program. Research and Politics. 1-7.

Lipson, G. S., Turner, J. T., Kasper, R. (2010). A strategic approach to police interactions involving persons with mental illness. Journal of Police Crisis Negotiations, 10 p. 30-38

Pacer Center, Inc. (2021). What youth need to know if they are questioned by police: Tips for parents to prepare their youth with a disability. Retrieved from: https://paautism.org/resource/teens-police-questioning. Action Sheet, PHP-c171.

From Sore to Soar

Policy Reform

Advocacy & Resources

  • Heritage Foundation

    • Website: Https://www.heritage.org

    • Description: addressing public policies working towards free enterprise, limited government, individual freedom, traditional values and a strong national defense

  • Life Spin

  • Mom’s Rising

    • Website: https://www.momsrising.org

    • Description: A social welfare organization winning legislation and issues through actions and campaigns

  • New World Foundation

    • Website: https://newwf.org/

    • Description: Economic equity, democratic rights, civic participation, with grants to support labor organization, immigrant work, labor exploitation, poor work conditions, and uncertain threats to residency.

  • The Organisation for Economic Co-operation and Development (OECD)

    • Website: https://www.oecd.org

    • Description: An international organization that works to build better policies for better lives. Shaping policies that foster prosperity, equality, opportunity, and well-being across social, economic, and environmental challenges.

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From Sore to Soar

Prader-Willi Syndrome

Lifelines, Helplines & Hotlines

Advocacy & Resources

  • Foundation for Prader-Willi Research

    • Website: https://www.fpwr.org

    • Description: Sign up for the registry to receive data shared back to the PWS community, and its researchers and scientists

  • Prader-Willi Syndrome Association (PWSA)

    • Website: https://www.pwsausa.org

    • Description: health, nutrition, parenting education

      $ Funding Opportunities

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From Sore to Soar

Pregnancy & Birth

The way you tell your story, can make all the difference

Lifelines, Hotlines, & Helplines

Advocacy & Resources

  • American Pregnancy Association

    • Website: https://americanpregnancy.org

    • Description: Healthy pregnancy advice, reproductive and pregnancy counseling, reproductive wellness, research, legislation, business and insurance advocacy and community awareness.

  • *A Step Ahead Foundation

    • Website: https://www.astepaheadfoundation.org

    • Description: Providing teens and women access to long-acting, reversible contraceptives (LARCs), way to preventing pregnancies, educate community and private clinics, scholarships

  • Baby Bundles

  • Baby2Baby

    • Website: https://baby2baby.org

    • Description: Mega diaper bank and the nonprofit organization providing essential items to children distributing over 200 million items to children in homeless shelters, domestic violence programs, foster care, hospitals, underserved schools, and in the wake of disaster.

  • Protect Sweet Peas

  • The Cloth Option (TCO)

    • Website:

    • Description: New or gently used cloth diapers and other hygiene produces to families in need

  • Lily’s Hope Foundation

  • Preborn

    • Website: https://preborn.com

    • Description: Prolife organization that supports life-affirming pregnancy clinics in their mission to reach women at no cost considering abortion, providing ultrasound machines, evangelism training and resources

  • Mother Helping Mothers. Inc.

  • National Diaper Bank Network

  • Operation Shower

  • March of Dimes

  • Star Legacy Project

    • Website: https://starlegacyfoundation.org

    • Description: A community of researchers, health professionals, policy makers and individuals dedicated to reducing pregnancy loss and neonatal death while improving care for families who experience such tragedies 

  • Women, Infant & Children (WIC) Nutrition Program

    • Website: https://www.fns.usda.gov/wic

    • Description: apply for food assistance when pregnant and for children under age 5, including formula, protein, grain, fruits, and vegetables. Must meet application requirements specific to income, residency, and more.

  • Thriving Mum

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From Sore to Soar

Pregnancy & Loss

The way you tell your story, can make all the difference

Lifelines, Hotlines, & Helplines

Advocacy & Resources

  • Parker’s Purpose

    • Website: https://parkerspurposeministries.com

    • Description: Donates care boxes to local hospitals in our community to be given to mothers delivering stillborn at any gestational age, donating to 17 hospitals along the Mississippi and Alabama Gulf Coast, and Vermont

  • Judy Brady Foundation

  • March of Dimes

  • Star Legacy Project

    • Website: https://starlegacyfoundation.org

    • Description: A community of researchers, health professionals, policy makers and individuals dedicated to reducing pregnancy loss and neonatal death while improving care for families who experience such tragedies 

$ Funding Opportunities

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